As the CHD LIFE+ study’s key consumer partner, HeartKids will be critical to leveraging families’ involvement in the important co-design phase. Holly Williams, Queensland State Manager, HeartKids explains how family-centred advocacy will influence the design of, and planning for, local models of care across Australia.
The next important step in the CHD LIFE journey is CHD LIFE+. Led by AusHSI, and in partnership with cardiac centres nationally, developmental follow-up experts, HeartKids and Children’s Hospital Foundation, this program of research (2020-2024) aims to develop family-centred, long-term developmental care models across Australia, including evaluation of our CHD LIFE model.
The Objective Randomised Blinded Investigation with optimal medical Therapy of Angioplasty in stable angina (ORBITA) Study investigated the efficacy of percutaneous coronary intervention (PCI) using stents for symptom relief of stable angina (chest pain) in a double blind, placebo-controlled study. The study was the first of its kind and was the PhD project of Dr Rasha Al-Lamee, an interventional cardiologist at Imperial College London.
My PhD looks at overall access to care for our paediatric cardiac patients across the state and empowering primary care providers to help address the problem of patients' distance to the cardiac care unit in Brisbane. This also lines up with a new initiative in the cardiac unit at the Queensland Children's Hospital to establish a clinical care network for our cardiac patients across the state.
My research will consider a comparative analysis of existing international Atrial Fibrillation screening strategies, their relatability to the Australian health system, and assess the cost-effectiveness of different AF screening strategies in Australia.
My research investigates parent and clinician preferences for a neurodevelopmental model of care to improve outcomes for children with congenital heart disease (CHD) in order to improve how models of care are designed and delivered.
